Honoring a visionary & pioneer.

Henri A. Termeer, 1946 - 2017


“The nature of rare diseases is that it is global.  Treating all patients became natural. It was not a choice. We would treat regardless of circumstance. We became the lifeline for these patients.”


Henri A. Termeer, an icon of the biotech industry and visionary Chief Executive Officer of Genzyme, prior to its acquisition by Sanofi, passed away unexpectedly in May of last year at the age of 71, leaving behind a legacy of entrepreneurial culture that harnesses cutting edge science and innovation to better the lives of patients afflicted with rare genetic diseases. Henri was a forward-thinker whose principles, intuition, community-mindedness, and unwavering determination and commitment to patients have truly transformed the biotech community and its approach to orphan diseases.

Henri set a standard that every patient would be treated regardless of their location or ability to pay. He forged the path for building a sustainable rare disease business, and many have followed his footsteps. Retiring from Genzyme in 2011, after his 28-year tenure, Henri led the company’s growth from a small start-up of 20 to 12,000 employees globally serving patients in more than 90 countries all while establishing Massachusetts as the mecca of biotech.

To honor Henri's legacy and celebrate his many contributions to a thriving industry that he helped build, a number of Henri's friends and industry leaders have come together to form the Henri A. Termeer Tribute Committee, co-chaired by Robert Coughlin, CEO, MassBIO and John Maraganore, CEO, Alnylam, working closely with Belinda and Adriana Termeer.  

Henri in GS Edited.jpg

Honoring Henri


The Henri A. Termeer Tribute Committee is working to honor Henri's impact and legacy by commissioning renowned sculptor Pablo Eduardo to create a life-size sculpture of Henri that will be installed in the “North” plaza in Cambridge, Massachusetts, opposite the Sanofi Genzyme building that was Henri’s creation. We are also on track to rename the plaza bordered by Linskey Way, East Kendall, Athaneum and West Kendall as the Henri A. Termeer Square in a ceremony on Rare Disease Day, February 28, 2018, which is also Henri’s birthday.

We will provide occasional updates on the Committee's progress, which you can see here.


Make a Contribution


Our goal is to raise $1,000,000.  The proceeds from all donations will be used to fund the commissioning and installation of the sculpture in a suitable setting on what will soon be renamed as Termeer Square, and to maintain the work and setting in perpetuity, as well as potential extensions of this endeavor to honor Henri’s legacy in the future.

Your contribution and generosity are greatly appreciated. Achieving 50% of this goal by February 28, 2018 will demonstrate not only the gratitude we feel for Henri’s pioneering leadership in our industry, but also the vigor and warmth we all associate with Henri as a friend and mentor. 

Donations will be made to MassBioEd Foundation, a 501(c)(3) public charity, earmarked for the Henri A. Termeer Tribute.